SYDNEY: Archie Innes was born with rare SOX2 Syndrome before 10 month. In this Syndrome, the child is born without eyes. Now His mother is hoping to raise $100,000 for pioneering treatment for eyes. Rare SOX2 Syndrome is leaving him blind, hearing-impaired and being fed from a tube. But as per expert doctors pioneering treatment may one day allow him to see the world through robotic eyes. GoFundMe page……..
Archie was also diagnosed with severe motor delay. It means he is unable to lift his head up. His Mother Fiona Gould has raised more than $10,000 in just two days on the “GoFundMe” page. She said: “He is my miracle man, he is a truly amazing little boy and he’s doing really well. “We found out at 33 weeks during a foetal MRI. We found that he would have no eyes, and that brought a lot of shock and anxiety about how he’d be. “In the end, his blindness became the best case scenario because of all the complications which come with his condition.(GoFundMe)
“There were lots of other things that happened and even today every day is a new challenge, but he’s a really interesting little boy.” “Our ophthalmologist has suggested that in ten years time they will be able to plug something into the back of the brain that will enable him to see images. “That is what is being developed at the moment, so we are hoping that we can afford to give him that treatment, but it’s going to be expensive.”GoFundMe
GoFundMe page set up to raise $100,000 for Archie Innes-
In this world, “there are not many children that are black blind-most children can see something. But he has a prosthetic in one eye but not the other. “I’m hoping he can be independent as he grows up and there are a lot of therapies for his condition. “Vision is the main sense which links the others, and he needs to find motivation to move around.(GoFundMe)
We know that “Children learn by seeing, but he’ll never naturally crawl or walk and we will need thousands of dollars of equipment to help him.” Archie is currently on the waiting list for yet more surgery-he needs grommets in both ears, a gastric tube in his stomach and eye surgery for his second prosthetic.GoFundMe
He currently has a conformer in the other eye, to stretch the orbit for the other prosthetic. This Mother-of-two Fiona, 40 years old, says many parents are hesitant to talk about infant blindness. Why, because it’s “so hard to cope with”. Despite the struggles of caring for a disabled child, Fiona says Archie has helped her live each day to its fullest. “Black blind” is a term for when somebody cannot see anything. Let’s hope for the best for little Archie, may god bless him. (www.news.com.au)